@gphetteplace, Thank you so much for the quick response. I appreciate the response and information. I, too, am a Phoenix Liver Transplant patient. I moved here from San Diego in Nov 2022 specifically for the transplant. For me, I got lucky and received the new Liver quickly, (Aug 2023) My condition was due to PSC, and my Meld score was in the high 20's. I was having issues with fevers due to scarred bile ducts and that had a lot to do with me getting the new liver.
Like you, I just keep moving to keep the pain in check as best as possible. Hands are the worst in the morning, Knee's, Hips, Lower Back, Elbows, and shoulders are pretty much all day.
I contacted them yesterday, after reading all the joint pain issues posted on this Chat site, and they are now working to set a schedule for checking my bones. We'll see how that goes?
Having your information will come in handy to make sure they don't try to give me the run-around. It's more than a little disappointing that they have the nerve to pretend like they've never heard of, or seen, this condition before, especially after reading how many patients out there are experiencing the same exact thing. (Mayo - Very Disappointing)
Thanks for your help and fingers crossed I come out of it as you did.
I'll repost on progress once we get to that point. Thanks.