Not true, if pheo is secreting excess hormones prompt removal is necessary. Mine is secreting high amounts of epinephrine, norepinephrine and metanephrines are through the roof. Mine is located inside the medulla and entire gland needs removal.
I had my right adrenal gland removed in 2023. I was sore for a few days but got back to a normal routine fairly quickly. Sending positive thoughts your way
Hi,
My wife has a Pheochromocytoma which many in her family have had and died from. She had a massive hemorrhage in 2016 and no one has been able to determine the etiology. The Pheochromocytoma was only discovered after the stroke but she is certain it has been there most of her life and is very likely the cause of her stroke.
She has been to doctor after doctor, including MD Anderson, and we have tried getting Mayo Clinic to consider looking at her, they will not.
If she does not find someone willing to do surgery to take it out, we are certain that, like the rest of her family members, she will stroke again, have a heart event or have cancer all of which run rampant in her family. The symptoms she had before her stroke have started happening again for the last 2.5 years and we have no one willing to help her.
Does anyone know an endocrine surgeon who is lgbtq safe and willing to take the Pheochromocytoma out with previous blood work that is not very conclusive and imaging that shows it has grown a small amount in the past 6 years. She can not handle any more testing, blood draws etc.
we would want to do a consult via video or the phone before driving to wherever the doctor might be located to have it taken out.
Doctors have been extremely traumatizing for her in ways I won’t detail here.
Thank you,
We are desperate for help.
@janfam
Mine took 25min.
Absolutely wonderful clinic, hospital, staff, and doctors. He's a fantastic teaching physician as well and pray that he shares his knowledge with many people so that they can also treat patients and their illnesses to the best of their abilities with the proper knowledge and training. He says one in seven people have adrenal tumors or adrenal disorders and don't even know it. That blows my mind. Just thinking about that one in seven, his mind-blowing statistics.
Congratulations on a successful surgery and I'm hoping you're doing much better now. What
Thanks,
Dawn
Hi Dawn,
I am considering surgery w Dr Carling - I have a 5.1&5.1 incideteloma which according to tests is not putting out hormones but I have symptoms over the years- cold, low blood pressure, nausea etc, low T3 high reverse T3. Just afraid if I have only one adrenal gland~ how do I know that one is sufficient. How are you a couple of years later?
Thanks Jessica
Hi Dawn,
I am considering surgery w Dr Carling - I have a 5.1&5.1 incideteloma which according to tests is not putting out hormones but I have symptoms over the years- cold, low blood pressure, nausea etc, low T3 high reverse T3. Just afraid if I have only one adrenal gland~ how do I know that one is sufficient. How are you a couple of years later?
Thanks Jessica
@jporter
Hi Jessica,
Thank you so much for reaching out. I completely understand your concerns — I had many of the same ones before my surgery with Dr. Carling.
I had a similar journey: years of unexplained symptoms, dozens of doctors, and ultimately a diagnosis that changed everything. I had one adrenal gland removed due to a tumor (which turned out to be a non-secreting adenoma with features of Conn’s syndrome). Like you, I was nervous about relying on just one adrenal gland — but I’m here to tell you that two years later, (5/3/23) I’m doing very fantastic. My labs are stable, my blood pressure, potassium, magnesium, anemia, diabetes are completely back to normal and I follow up regularly with labs to monitor my electrolytes and kidney function. My left adrenal gland took over the work for the right one
Dr. Carling and his team were a godsend — so thorough, kind, and skilled. They helped me make peace with my decision, and I haven’t looked back. I’m happy to talk more if you’d like —
You’re not alone, and I’ll be praying for clarity and peace as you make the best decision for your health.
Warmly,
Dawn
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These excess hormones can cause severe damage to all major organs. My surgery is scheduled for April 4th
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1 ReactionYes, Pheochromocytoma in left adrenal gland. Secreting excess hormones and is located inside the medulla. Surgery in two weeks for Adrenalectomy
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1 Reaction@dbest1238, thinking of you as you prepare for surgery this week. How are you feeling?
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2 ReactionsAnxious, but always feel that way with all these crazy hormones. Scared, risky surgery. But have immense faith in my doctor and his team.
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3 ReactionsI had my right adrenal gland removed in 2023. I was sore for a few days but got back to a normal routine fairly quickly. Sending positive thoughts your way
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2 ReactionsDr. Tobias Carling Tampa Florida
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1 ReactionHi Dawn,
I am considering surgery w Dr Carling - I have a 5.1&5.1 incideteloma which according to tests is not putting out hormones but I have symptoms over the years- cold, low blood pressure, nausea etc, low T3 high reverse T3. Just afraid if I have only one adrenal gland~ how do I know that one is sufficient. How are you a couple of years later?
Thanks Jessica
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1 Reaction@jporter
Hi Jessica,
Thank you so much for reaching out. I completely understand your concerns — I had many of the same ones before my surgery with Dr. Carling.
I had a similar journey: years of unexplained symptoms, dozens of doctors, and ultimately a diagnosis that changed everything. I had one adrenal gland removed due to a tumor (which turned out to be a non-secreting adenoma with features of Conn’s syndrome). Like you, I was nervous about relying on just one adrenal gland — but I’m here to tell you that two years later, (5/3/23) I’m doing very fantastic. My labs are stable, my blood pressure, potassium, magnesium, anemia, diabetes are completely back to normal and I follow up regularly with labs to monitor my electrolytes and kidney function. My left adrenal gland took over the work for the right one
Dr. Carling and his team were a godsend — so thorough, kind, and skilled. They helped me make peace with my decision, and I haven’t looked back. I’m happy to talk more if you’d like —
You’re not alone, and I’ll be praying for clarity and peace as you make the best decision for your health.
Warmly,
Dawn
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