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Anyone have a neuroendocrine tumor in small intestine?
Neuroendocrine Tumors (NETs) | Last Active: Apr 2 8:35pm | Replies (26)Comment receiving replies
I was diagnosed in January that I had a NET. I had CT Scan and PET Scan with gallium. 3 NETs showed up in Small Intestine. I was scheduled for a Right Hemicolectomy Laparoscopic procedure. Pathology Report came back today and indicated 8 of 24 Lymph Nodes had Tumors.
Not sure what to expect as far as ongoing treatment.
Replies to "I was diagnosed in January that I had a NET. I had CT Scan and PET..."
Why did you have a CT/Pet in the first place? Did or do you have symptoms? You may or may not have surgery right now. There are teams of doctors that specialize in this type cancer. Did the pathology report come back as positive for NETs also? That can be critical because some insurance cos. want it verified under a microscope. I have NETs in the mesentery/small bowel also. I'm on a monthly injection called Lanreotide. Many people here on it also. This type cancer can be very slow growing. People can live a long time with it. Good luck.
@kenb58, I moved your post and replies to this existing discussion about small intestine NETs.
- Anyone have a neuroendocrine tumor in small intestine?https://connect.mayoclinic.org/discussion/anyone-have-a-neuroendocrine-tumor-in-small-intestine/
I did this so that you can read previous posts and connect with members like you.
You can also use the keyword "small intenstine" in NETs group search to find more related discussions: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=small+intestine#discussion-listview
Ken, have you started a list of questions for your upcoming appointment?
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Do you have an oncologist referral?