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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 14 hours ago | Replies (3499)

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@thompaud

My treatment consists of twice daily nebulizer with Albut and Ipratropium, followed by Wixela 500-50 and an Albut Rescue inhaler.
I have been to the ED twice, once in Dec and again in February. I have continued to have coughing, wheezing pretty much every day. My normal sat is now 94, but frequently decreases. I have chest heaviness and SOB most days at varying degrees. My energy level is low and I feel fatigued. I have been on Steroids and antibxs after each ED visit. I have a couple of days feeling some improvement, then boom, it's back. I have been in regular contact with my Pulmonologist who believes it will go away if it's Post Covid Asthma. Mine persists and can be very scary when I can't get a breath. My Pulmonologist says it's getting difficult to manage and that's why he suggested the bio-therapy as my next option. I will be seeing an Allergist for testing. I will do that before I make any other decisions. As you know the coughing can be so intense. My 2 grandchildren are scared to be around me, so my time with them is limited which is the worst. I also think getting this diagnosis at this age, which has become chronic, was hard bc I didn't know much about asthma. I didn't understand that some people will suffer every single day, as I have. I didn't know how sick I could become bc it was all new. I am so appreciative of your input and expertise and everyones willingness to share. I am so grateful for the Mayo Clinic groups as I have learned so much in such a short time. It was so helpful to read what other people experience that were similar to mine, but I couldn't put into words.
I was diagnosed with Rosacea about a year ago, also new to me. But I find my Rosacea is worse since my asthma diagnosis. I am on ATC antibxs for that. Anyone else notice a corelation?

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Replies to "My treatment consists of twice daily nebulizer with Albut and Ipratropium, followed by Wixela 500-50 and..."

Two things come to mind - What does CT imaging show is going on in your lungs? Since the infections are recurring, has the pulmonologist taken a sputum sample and had it cultured to see what is caus I ng the infection, or referred you to an infectious disease specialist? It is possible that you have an unusual bacterial or fungal infection that is not responding to standard antibiotics.