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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 5 days ago | Replies (1051)

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@pmm

Welcome to the blood cancers and disorders discussion @kaiti
When meeting with your oncologist regarding MGUS, focus on understanding the condition, its risks, and your individual monitoring plan. Ask about the likelihood of progression and what benchmarks your physician will look at to monitor this, what tests are needed, and How often will you need follow-up appointments.
you might also want to discuss any coexisting conditions and how they might impact your care. Are there any medication's that you're taking that your hematologist/oncologist needs to be aware of?
I think it's also important to have a discussion about how you would like to communicate with your physician. Do you want to be called if there are any concerning lab results or findings that need attention or would you rather wait until your scheduled appointment to discuss this? Do you habitually look at "my chart" to read your reports or do you wait to look at them with your physician? You know your self best and you know what you're tolerance for anxiety is like. Think through that carefully before you have that discussion.
I personally don't recommend getting your lab results or scan reports and jumping right into Dr. Google. That is the road to madness.
And I say this from personal experience. practice about 1 million times what MGUS stands for because even medical professionals will ask you what it is. 😳
i'm sure other members have tidbits from their own experience and I hope they jump in here.

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Replies to "Welcome to the blood cancers and disorders discussion @kaiti When meeting with your oncologist regarding MGUS,..."

Seriously, I told a friend my diagnosis. She’s a PA. Her reply, “What’s that?”