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MDS (myelodysplastic syndrome): When to start treatment?

Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (40)
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@tinytwiggy

Gosh, sorry that R has been through so much. I don't have any answers for you. It's more advanced than where we're at. Hopefully someone with similar situations can help. It's hard to know what to do, each time you're faced with new symptoms, and problems. One thing we can do is pray that R can get his platelets up and that he can start feeling better soon. Hang in there! 🙏❤️

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Replies to "Gosh, sorry that R has been through so much. I don't have any answers for you...."
dancouclanel4 | @dancouclanel4 | Mar 18 8:15am

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML . It's been a journey. Similar transfusion issues.
To the point...increasing platelets naturally can be found on YouTube, yes you can help but the primary treatment is your oncologist plan. No one says this but if you are overweight loose some of it.
And keep asking questions. Good luck.

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