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Post-treatment follow up for clear cell endometrial cancer
Gynecologic Cancers | Last Active: May 14 2:09pm | Replies (41)Comment receiving replies
Thank you for sharing your knowledge and viewpoints.
Though I’ve been NED these past 2+ years, I know enough about the aggressive nature of my CCC to know that another recurrence is more than likely and that there isn’t really anything out there for me.
The 3 month CT scans were reassuring in a way and I’m having trouble with doubling that time frame. It’s something I will have to learn to live with.
And I guess I misunderstood Signatera because I thought that it would pick up the presence of cancer cells in the blood even before a scan would find something.
I’m always learning.
Here’s to better detection and treatments. (And a cure!!)
Replies to "Thank you for sharing your knowledge and viewpoints. Though I’ve been NED these past 2+ years,..."
You did not misunderstand. It does pick up circulating dna from your tumor in the blood test long before it shows up on scans which leads to early detection of a recurrence. A very good tool to add to the toolbox.
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The reduction in surveillance is because recurrance is highest in the first 2 years. The reduction of surveillance is what research says is most effective. But the problem with clear cell and serous is that they are rare and not studied. I will be very nervous about the reduction.
I'm another topic but one I am interested in is lifestyle approach to cancer prevention. You haven't had a recurrance and for me is so hopeful. I want to know more about what you are doing to stay healthy and cancer free. Do or have you made lifestyle changes such as diet complementary therapies, exercise?
I kind of dispute to find a path forward.
Denise