← Return to Living with Neuroendocrine NETS, any advice?

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@kaiulani

I live in Canada: aside from having a Whipple / liver debulking in October 2023 and starting monthly lanreotide injections in March of 2024, the main “treatment” that has been offered to me (repeatedly) is MAiD (a handy acronym for “medical assistance in dying”). I’m still waiting and waiting and waiting some more to hear about PRRT. I have NEVER been contacted about any clinical studies. I have stage 4 pNET which is ruthlessly advancing but I don’t even have a follow-up appointment. That is the state of healthcare in Canada SMH

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Replies to "I live in Canada: aside from having a Whipple / liver debulking in October 2023 and..."

@kaiulani: I would not accept this lack of treatment! Search out a Neuroendocrine Cancer Specialist and be persistent! Most Cancer Hospitals have information on specialists that will help you. There are many treatments that are available depending on your medical issues and you need their guidance. I know it seems like a brick wall, but other Canadian NET patients have been successful in obtaining quality care. I wish you the best…