← Return to MGUS and pain

Discussion

MGUS and pain

Blood Cancers & Disorders | Last Active: Mar 20 11:12am | Replies (18)

Comment receiving replies
@4kleo

I am also experiencing neuropathy in my hands and feet and you’re absolutely correct about getting into see a neurologist. I’ve been trying for six months. In fact it was the pain in my hands and feet and neck that sent me to the doctor in the first place and then they did bloodwork and discovered the MGUS. It’s been a rocky road for me because I thought I was going to die. I’ve never been sick. I’m 76 years old. I’ve always been active and in a good healthy height to weight range and eat a healthy diet and exercise and drink lots of water so in the hand and pain foot pain came on. ( and a slight occasional imbalance). very annoying to a very busy and active Nonnie. The neuropathy has progress while I wait to see the doctor. I am just waiting for that appointment. They did call and move it up from April 24 to April 1 so that is a citizen of plus I have to get my PCP to request a referral it from my insurance company because I have advantage insurance( that was a mistake. It seemed OK at the time because I was so healthy. This string has been very helpful to me and I appreciate every one of you responding. God bless us all.Kleo

Jump to this post


Replies to "I am also experiencing neuropathy in my hands and feet and you’re absolutely correct about getting..."

@4kleo
I'm glad to hear you were tenacious about getting a referral and appointment to a neurologist. I'm afraid you're correct about advantage plans. They seem so good from the financial investment side, but if you get sick and need to jockey around among specialists to meet your healthcare needs, it can be a problem.
I'm worried that all of us on Medicare will only have advantage plans to choose from, fraught with all of their limitations. Fingers crossed.
I have yet to fully understand the relationship between the pain and the neuropathy. One would think as the nerves are damaged that there would be less pain rather than more. The pain in my feet is really quite severe when it raises it's ugly head. Other times, I forget about it entirely. It does impact my balance and that's a concern. I used to see older people hobbling around and thought that they must be terribly out of shape but I was a distance walker prior to neuropathy. It's incredible how fast it changes your lifestyle.
I do hope that your appointment in April helps. Will you let us know how things go?