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16 Years With CRPS

Chronic Pain | Last Active: 2 days ago | Replies (25)

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@grannyzoo

Watch Dr Getson on UTube. He is a wealth of information. Address your diet immediately as he states. Stop all sugar, it is inflammatory ,as a matter of fact if it is white don't eat it. Sugar, flour and rice are examples. Stay away from red meats. You do need protein but limited to chicken, turkey, and fish. I ended up at a teaching hospital (UNC) and got some relief. I did get a Boston Scientific Implant. Keep moving. there are different stages to this disease as explained on web look up a support group listed under RDS. Hopefully, yours will clear up.

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Replies to "Watch Dr Getson on UTube. He is a wealth of information. Address your diet immediately as..."

Thanks for the information, but Im already on strict diet and only eat chicken breast as a meat source. No sodas, no alcohol, No smoking, etc..... (Yes, I do cheat and have red meat now and then on occasion) Everyday its just blah meh food. What A life that you cant enjoy simple dang things.
16 years with this and still counting, I think my next move is amputation below my knees. Ive been to some of the best doctors I know off. This right now has nothing to do with diet, the reaction i have is because my stimulator is not blocking pain anymore.

I just had blood work all that crap done and its all good. This thing has been eating me alive for years now. 16 procedures and 13 surgeries and now an upcoming surgery to get this replaced. I know that I can adapt to prostestics, Walter Reed can get me back on my feet. Ive been researching stories and actual statistics with amputations, Ill take 60% chance over this.
Im not afraid Phantom pain, I just want this to go away. I apologize if I sound to direct, I do the same dance with every specialty clinic.

EDIT: Good Grief, I sound like an A..... sorry for that, the day is kinda crappy. Sorry