Reclast problem

Posted by deedee49 @deedee49, Mar 4 10:03am

Before I had the IV infusion reclast I was 2.4 after the infusion mine went to 4.4 severe osteoporosis. Why would that happen?

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susanjohnston | @susanjohnston | Mar 16 3:36pm

In reply to @ladydiscdy "I had a reaction with the first infusion. It was flu like symptoms but they passed..." + (show)

Thanks so very much. What would be the indicator that would cause the doctor to stop the break and put you back on Reclast?

ladydiscdy | @ladydiscdy | Mar 16 4:11pm

In reply to @melia7 "I am going to take Reclast as well, and would like to know about adverse reactions..." + (show)

My first infusion I had flu like symptoms. They passed in about 6 hours. I had no adverse reactions with my second infusion. After my second infusion, I had a DEXA scan about 7 months later, my numbers improved. Currently I am on a break from Reclast due to the improvement, and also my bone markers from bloodwork. I have more bloodwork scheduled for May. I’ll see what happens after that. Hope this helps.

ladydiscdy | @ladydiscdy | Mar 16 4:14pm

In reply to @susanjohnston "Thanks so very much. What would be the indicator that would cause the doctor to stop..." + (show)

From what I know, the bloodwork showing the bone markers will tell if I need to go back on Reclast sooner than later. I’m hoping I can have another 6 to 12 months off. We will see after the bloodwork in May.

susanjohnston | @susanjohnston | Mar 16 10:01pm

We would love to have you provide an update in May! So appreciate the ability to communicate!

kquilts | @kquilts | May 11 11:12am

In reply to @deedee49 "Sorry yes it's a t-score for lower spine and it was done on a dexa in..." + (show)

My understanding is you must have your DEXA done at the same place as the machines are calibrated differently from site to site. My endocrinologist said I was to have the DEXA scan done at the same place as it will be a true reading of bone health and whether it has improved or not.