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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: Jun 1 6:50am | Replies (3552)

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@sueinmn

Welcome to Mayo Connect - We are a large and varied support community, so I am not surprised you didn't find the asthma group right away!
Here we are:
https://connect.mayoclinic.org/discussion/adult-onset-asthma/
To me, who has had asthma most of my adult life, six months seems soon to be starting an injectible therapy for newly diagnosed asthma, but I am not completely familiar with the most current protocols.

What treatments has the doctor tried so far? A few years ago, when I was not getting good results from my long-time therapy, my pulmonologist tried Symbicort (actually the generic version) and it has really helped me. Others in the asthma group have found relief from Trelegy or other inhalers originally intended to treat COPD.

What symptoms are you trying to control?

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Replies to "Welcome to Mayo Connect - We are a large and varied support community, so I am..."

My treatment consists of twice daily nebulizer with Albut and Ipratropium, followed by Wixela 500-50 and an Albut Rescue inhaler.
I have been to the ED twice, once in Dec and again in February. I have continued to have coughing, wheezing pretty much every day. My normal sat is now 94, but frequently decreases. I have chest heaviness and SOB most days at varying degrees. My energy level is low and I feel fatigued. I have been on Steroids and antibxs after each ED visit. I have a couple of days feeling some improvement, then boom, it's back. I have been in regular contact with my Pulmonologist who believes it will go away if it's Post Covid Asthma. Mine persists and can be very scary when I can't get a breath. My Pulmonologist says it's getting difficult to manage and that's why he suggested the bio-therapy as my next option. I will be seeing an Allergist for testing. I will do that before I make any other decisions. As you know the coughing can be so intense. My 2 grandchildren are scared to be around me, so my time with them is limited which is the worst. I also think getting this diagnosis at this age, which has become chronic, was hard bc I didn't know much about asthma. I didn't understand that some people will suffer every single day, as I have. I didn't know how sick I could become bc it was all new. I am so appreciative of your input and expertise and everyones willingness to share. I am so grateful for the Mayo Clinic groups as I have learned so much in such a short time. It was so helpful to read what other people experience that were similar to mine, but I couldn't put into words.
I was diagnosed with Rosacea about a year ago, also new to me. But I find my Rosacea is worse since my asthma diagnosis. I am on ATC antibxs for that. Anyone else notice a corelation?