I see my additional messages may not have reached you.
Go to pvreporter . com. There is a list of MPN specialists there. Also Facebook has two support groups called Myelofibrosis Support Group. Each has many people like you and I and a great source of information. Healthtree.org is also informative as is MPN advocacy.com. I attended one of their events while in Tampa and it was outstanding. I especially like online presentations by Gaby Hobbs, an MPN specialist in Boston. She explains MF the best. Hang in there. It gets a little more easy to bear with knowledge. BTW. where are you located?