Thank you so much for your reply, this is all very helpful! I truly appreciate the insight here. It’s already such a big pill to swallow dealing with the diagnosis but it’s been made harder with running into the wall and feeling so unsure of where to go so I’m really thankful for this community’s help. I was able to find out my city does have a center of excellence so that’s something I can push for!! I will be asking for a second opinion for sure.