Honesty, I don't know how he came up with 10 years either. It's a blur but I think he said 10-15 years. I'm getting a second opinion for this all as well. My thinking is that if I need to get this in the next decade, why not do it when I'm at my youngest fittest time so that my healing is faster. I have no clue what state I'll be in 10 years and while I don't take this decision lightly at all, I am leaning toward earlier than later.
Generally, I feel mostly fine during my workouts. Only more recently, I've had some minor chest pain/palpitation and some minor lightheadedness with more rigorous exercise. It's one of those things that I wonder "am I just working out too hard" or "is this HOCM".
The stress test showed a resting LVOT gradient of 50mmhg at rest and then with exercise he said slightly above 70mmhg. The tech noted as 233mmhg with exercise, but cardiologist said with analysis it shows much lower.
I notice that when I walk up stairs (2 flights) I get winded where I never did before. I don't know if I'm overanalyzing myself though. My workouts are pretty good although I'm obsessively checking my heart rate to make sure I don't get too high.
It seems that at this time, my body may be symptomatic with higher pressures with exercise, but I'm not necessarily having extreme symptoms that would have caused me to question, if I weren't aware of my HOCM.
They've cut back my metoprolol for now to only 12.5mg a day, time released for now because I was having high fatigue with the medication.
The problem is that my resting heart rate was 40-50bpm with the 25mg and after seeing the stress induced pressures, it didn't give them much room to increase the medication before me going into bradycardia.
So I'm at the stage where I'm going to get a second opinion on all of this. I know Cleveland Clinic does a virtual second opinion. I'm looking into Mayo Clinic's second opinion options, which seem a little less straightforward.
I'm also doing my second opinion with Kaiser Permanente next month and speaking to the surgeons there and getting member services to give me the numbers of procedures they do a year. It's going to take a long time to build my "case" on why I should have this done at a COE. Or I'll need to cancel that plan, switch to another plan for my family, and start halfway with finding new doctors and getting the referrals. I am fortunate to have the time to sort this out, but it's a journey that is taking up a lot of my headspace right now.
Honestly 50mmHg is considered severe!
Im no cardiologist but it really sounds like your already there!
Second opinion is worth seeking and talking to your cardiologist about camzyos if its right for you!
Your already showing signs and your gradient is telling you that there is an obstruction, with that your heart is not moving the amount of oxygenated blood it needs, which will lead you to heart failure!!
Dont let yourself end up like me!
Misdiagnosed and trips to the ER and hospital stays
Of course they will probably run their own test on you but its alot faster results!
Because they already know what they are looking for!
The camzyos has really helped bit i cant get after it on my workouts, so i have elected to proceed with septal myectomy in June
Best of luck to you