My oncologist just changed my immunotherapy drug to the generic one Lenolidomide (SP.) I called the clinic when I got home @ 6:00 PM and it was already the on/call staff. Of course I didn’t get a call back, so I persisted at 8:00 AM to call the oncology pharmacy - no answer there.
I then called my oncologist message line at 8:30 AM and left a message there also - I got a call back from my pharmacist and was told that my doc wouldn’t change anything unless he thought the above drug would be a better fit - I guess he might be afraid I have another stroke (ya think).
I did tell the pharmacist that I got stomach cramps on Friday and the last time I ever got those was when I had my period, some 50 years ago - that I never had stomach cramps recently from anything! This pill is making me get up twice a night after 12:30 AM! (I am still up). I think I am being used as their guenie (SP.) pig. The pharmacist said she is at my clinic on Thursdays and to stop in to see her - if I can get past the people at the front desk!
I am going to ask my doc about the bone marrow stem cell transplant this coming week and let him know Mayo Clinic in Jacksonville FL. does these surgeries quite a bit and my only son lives near there.
If I could get it done over the summer, possibility I could be cured and go back to work FT or get dead😷😱. Only two (2) outcomes, one or the other.
It’s been great replying to you - sometimes I don’t answer right away-
Lizzy