Hello @samflow, Welcome to Connect. Venting is OK. I would think with all you have been through trying to figure out what is going on after seeing many different doctors would make any of us want to vent. Not sure if you are aware of the Sjogren's Foundation but they have a lot of information and resources that might help you learn a little more about the condition - https://sjogrens.org/understanding-sjogrens.

You might want to scan through the discussions and comments for the two conditions you mentioned to see if others have shared similar symptoms or suggestions that might help. Here are links to the search results:
-- "Sjogren's" - https://connect.mayoclinic.org/search/discussions/?search=sjogren%27s
-- "Lupus SLE" - https://connect.mayoclinic.org/search/discussions/?search=Lupus%20SLE

I know you have seen a lot of different doctors and specialists but have you considered seeking help at a teaching hospital or major health facility like Mayo Clinic where they practice patient centered healthcare?