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Pulmonologist says I should be dead by now

Autoimmune Diseases | Last Active: 1 day ago | Replies (16)

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@johnbishop

Hello @samflow, Welcome to Connect. Venting is OK. I would think with all you have been through trying to figure out what is going on after seeing many different doctors would make any of us want to vent. Not sure if you are aware of the Sjogren's Foundation but they have a lot of information and resources that might help you learn a little more about the condition - https://sjogrens.org/understanding-sjogrens.

You might want to scan through the discussions and comments for the two conditions you mentioned to see if others have shared similar symptoms or suggestions that might help. Here are links to the search results:
-- "Sjogren's" - https://connect.mayoclinic.org/search/discussions/?search=sjogren%27s
-- "Lupus SLE" - https://connect.mayoclinic.org/search/discussions/?search=Lupus%20SLE

I know you have seen a lot of different doctors and specialists but have you considered seeking help at a teaching hospital or major health facility like Mayo Clinic where they practice patient centered healthcare?

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Replies to "Hello @samflow, Welcome to Connect. Venting is OK. I would think with all you have been..."

Hi John! Many thanks for your response and helpful suggestions.
I'll def be looking into the links you kindly provided here.
There are so many people on this site that are dealing with incredible health challenges ("challenges" may be putting it too mildly) and I'm touched by all those reaching out, like yourself, with kindness and help.
Thank-you, John. A virtual hug sent to you all.