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Iron overload, or hemochromatosis

Blood Cancers & Disorders | Last Active: May 31 12:38pm | Replies (13)

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@kathymiami

Is that the only blood test that is not normal?
My Dr also ran other iron tests...he said one was not enough.

I was just tested for the Hemo Gene...and from my reading the results, I have two of the H63D gene. One gene from my father (who had Hemochromatosis)
and shockingly one gene from my mother - who was barely sick a day in her 92 years. None of my parents' families had/have the illness. I have not met with my Doc yet to review the results.

I was doing some reading from reliable sites and it is common for those with northern European descent to carry one of the 3 different kinds of gene. You can carry the gene but never get symptoms. It seems that "donating" blood is the only remedy.

I hope you get some reassuring answers soon.

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Replies to "Is that the only blood test that is not normal? My Dr also ran other iron..."

I feel for you. I have only one of the genes. However I developed porphyria cutanea tarda and have been receiving phlebotomy treatment for several months. My iron is now down to the correct level. I've been told that the level will probably go up again since iron is in so many foods. Best of luck to you.