@loribmt asked about changes in my husband's ET & MF of 25 years ago.
There have been no changes in the diagnosis. He had low hemoglobin 2 years ago, so he had to have EPO injections twice. BUT....

BUT, his Hemo Doc and his Urologist a the same hosptial clearly were not reading med notes. He had prostate cancer a year before and proton therapy radiation. His Urologist had said the bleeding was normal (for a year!) but I finally pushed for a colonoscopy which found he was. bleeding from his large intestines. When the two bleeds were cauterized, his hemoglobin went back up.

Just because one has ET/MF doesn 't mean the issues are always due to that illness.