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I have a 1cm BD-IPMN. Just saw a doctor at Mayo who tried to reassure me that only 2% will become malignant. Not consistent with what I've read, but he has ordered an EUS ( my 2nd) and will do another MRI in one year. I would have surgery tomorrow if they would operate, but the guidelines suggest watch and wait. I won't ever be totally comfortable with this approach.
Replies to "I have a 1cm BD-IPMN. Just saw a doctor at Mayo who tried to reassure me..."
I got the same reassurance from my GI doctor at NW in Chicago- don't worry about this, it's a very small chance this will ever turn into cancer.
However, all the stats, studies, and information I read online say my risk is a lot higher than 2% in my lifetime. I have read many studies that show a much higher risk. SO, I don't know who to believe or trust.
Add me to this category as well…June 2023 they found a cyst on my pancreas. Mayo Rochester / Jacksonville have been monitoring mine with MRI Contract scans every 6 months (now every 1 year). Currently I am asymptomatic.
Both my Mayo team and 2 PCPs say the same,..that the majority do not turn cancerous. At my FIRST Mayo visit, the doctor knew I was
nervous and worried,…he put his hand on my knee and looked me in the eye and said, “Mike, don’t worry, you’re at Mayo”…
That went along way!…
Yes I have the same scanxiety each time. I daily say the ‘Surrender Prayer’ (you can find with an Internet search) to remind me that Jesus will take care of everything and not to worry. He loves you and whatever the outcome it is for your best. It helps knowing Gods will is in control.
My prayers and thoughts are with you. Please do the same.
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I, too, am in surveillance now a year into it with having one EUS and three images, MRICP. There are 2 IPMN largest 1.2cm. I found them when had a CT with horrible stomach issues, seems I’m told not related as well. We continued investigating, and did all the testing for gluten, PEI, fecal, blood, and nothing stood out. Booked a nutritionist and did the FODMAP diet. Seems I’m sensitive to dairy now. Issues resolved by taking nutritional supplements, eating and taking probiotics never eating past 6pm (GERD), and no onions, garlic and intermittent 14-16 hours fasting. My doctor thinks it all happened from antibiotics. I’m totally fine now. I just have this horrible scanxiety to deal with as my MRI is due now in a year after initial ones 6mos apart. They seem to be stable. I also went for second opinion to a pancreatic gastro at Mayo in Rochester. Awesome experience! He assured me a low probability of cancer but have to monitor and know the signs of worrisome features. I sent my scan to him for second reviews too.
I’m on with my life now and walking, traveling and just saying a prayer of thanks as I see how fortunate I am to have found it early and not late. I see this as a blessing. I guess that’s my coping skill. Know that you’re not alone!🙏
PS I did lose 10 pounds and kept it off during all this so that was good!