I'm 74, notice small hand tremor in my left hand since my early 40's. my hands are shakier now and this past 2 years if have a verticle head wobble when I'm sitting. I know if I relax my shoulders it stops but I have to concentrate on doing that to keep it from starting again.
I'm 74, notice small hand tremor in my left hand since my early 40's. my hands are shakier now and this past 2 years if have a verticle head wobble when I'm sitting. I know if I relax my shoulders it stops but I have to concentrate on doing that to keep it from starting again.
I’ve suffered 15 years from hand tremors and voice tremors. My voice sounds strained and wobbly when I speak. Katherine Hepburn had this. Aggravating and incurable, sadly. I am on gabapentin both AM and PM…600 mg each dose. There are currently no drug’s out there to ease the symptoms.
I suggest you find a Neurologist who can best explain your issues. So sorry…aging SÚ-KS
I've been to 2 different neurologists and offered me parkinson meds but told me the side affects and suggested I wait till my tremors got really bad. There are also combinations of meds they offer that are not for ET but seem to help. I had a friend on them. Not ready for any of that yet. I knew a gentleman that had the voice tremors and did public speaking and he went for speech therapy and it helped him. So you might want to try that. Thanks for your reply and suggestions.
I've had essential tremor for years. Diagnosed with generalized myasthenia gravis (Mg) Oct. 2024. Take primidone but it only helps some. Take mestinon for MG and that has made twitching/shaking worse. God bless all of us warriors.
Don't know what an internal tremor is but I may have. I need to strong sleep medication to get a good nights sleep. With it I am great the next day without it I am rubbish. I believe there are different syndromes of Tremor and a lot of medical ignorance.
My mother had exact thing. She never abused her body in any wat but passed at 88 from cancer.
Just joined (3/23/25).S
Male 77 yrs. Tremor in right hand or 8-10 years-moving to left. Sleep disturbance when awakening early will not allow adequate rest. Prolonged sleep deprivation coinsides with an unusual sensation inside my head. End up sitting in chair with no motivation and no energy. My mother had pretty exact same symptons. She passed at 88 from misdiagnosed colon cancer. My mother never abused her body in anyway so I know it is all genetic.
I have been trying different sleep meds which have shown great promise. I am thinking an anxiety component to my tremor related sleep issues. Sleep aids my intentionally or unintentionally be anti-anxiety. Neurologists seem to have very little knowledge of tremors. I am in process of evaluation for HIFU. Comments welcome.
My mother suffered with severe essential tremors and now my sister, brothers and myself all have them. My two sons also are seeing the beginnings of the tremors in their hands. My sister has them in her hands and legs, I have them in my hands and head and my brothers have them in their hands. My mother's got so bad that she had to have a caregiver there to feed her because she couldn't keep food on a spoon or fork and she couldn't hold a cup or a glass. She could no longer read and finally it became hard for her to even watch television because the tremors were so severe. I am on three medications for the tremors and it seems to be helping but if I start to get as bad as my mother I would actually consider the brain surgery to control the tremors. There is a movement disorder clinic within three miles from my house with several specialists so I feel comfortable that I am getting the best care available at this time. At least this is a benign condition and is not terminal and for that I am very grateful.
I have needed to keep my ferritin level over 75 which requires me to use iron supplement Last year I had an intravenous Iron drip to boost my ferritin level. RLs sleep issues helped by adequate ferritin Have had mild RLS 30 yrs. Now also use Neupro patch 2 MG to control RLS all day instead of Gabapentin and Ropinerole. I patch a day gives my legs peace. Former neuros just kept prescribing more drugs as my body became acclimated. Patch also used at higher doses to treat Parkinsons. May need to connect with neuro who specializes in movement disorders.
I have needed to keep my ferritin level over 75 which requires me to use iron supplement Last year I had an intravenous Iron drip to boost my ferritin level. RLs sleep issues helped by adequate ferritin Have had mild RLS 30 yrs. Now also use Neupro patch 2 MG to control RLS all day instead of Gabapentin and Ropinerole. I patch a day gives my legs peace. Former neuros just kept prescribing more drugs as my body became acclimated. Patch also used at higher doses to treat Parkinsons. May need to connect with neuro who specializes in movement disorders.
I was diagnosed with essential tremor in 2018. Since then I have taken gabapentin (which did not help), primidone (which helps some), and a cala trio bracelet (which has helped the most). My tremors are mild, but does cause me problems in doing many things, such as brushing my teeth, using a hot curling iron to do my hair, buttoning clothes, clipping my nails, many other things. Due to the mildness of my tremors, I am adjusting. The cala trio bracelet seems to calm the shakes, I use it 3-4 times per day. I currently take 2 100 MG tablets of primidone daily, at night since it does make me sleepy. The cala trio bracelet has adjustments on it from 75 to 700, am currently using it in the 450 range. An electrical shock can be felt as it travels into my thumb and hand area. If my tremors do not increase significantly in the coming years, I can life with them.
I'm 74, notice small hand tremor in my left hand since my early 40's. my hands are shakier now and this past 2 years if have a verticle head wobble when I'm sitting. I know if I relax my shoulders it stops but I have to concentrate on doing that to keep it from starting again.
I’ve suffered 15 years from hand tremors and voice tremors. My voice sounds strained and wobbly when I speak. Katherine Hepburn had this. Aggravating and incurable, sadly. I am on gabapentin both AM and PM…600 mg each dose. There are currently no drug’s out there to ease the symptoms.
I suggest you find a Neurologist who can best explain your issues. So sorry…aging SÚ-KS
I've been to 2 different neurologists and offered me parkinson meds but told me the side affects and suggested I wait till my tremors got really bad. There are also combinations of meds they offer that are not for ET but seem to help. I had a friend on them. Not ready for any of that yet. I knew a gentleman that had the voice tremors and did public speaking and he went for speech therapy and it helped him. So you might want to try that. Thanks for your reply and suggestions.
I've had essential tremor for years. Diagnosed with generalized myasthenia gravis (Mg) Oct. 2024. Take primidone but it only helps some. Take mestinon for MG and that has made twitching/shaking worse. God bless all of us warriors.
Don't know what an internal tremor is but I may have. I need to strong sleep medication to get a good nights sleep. With it I am great the next day without it I am rubbish. I believe there are different syndromes of Tremor and a lot of medical ignorance.
My mother had exact thing. She never abused her body in any wat but passed at 88 from cancer.
Just joined (3/23/25).S
Male 77 yrs. Tremor in right hand or 8-10 years-moving to left. Sleep disturbance when awakening early will not allow adequate rest. Prolonged sleep deprivation coinsides with an unusual sensation inside my head. End up sitting in chair with no motivation and no energy. My mother had pretty exact same symptons. She passed at 88 from misdiagnosed colon cancer. My mother never abused her body in anyway so I know it is all genetic.
I have been trying different sleep meds which have shown great promise. I am thinking an anxiety component to my tremor related sleep issues. Sleep aids my intentionally or unintentionally be anti-anxiety. Neurologists seem to have very little knowledge of tremors. I am in process of evaluation for HIFU. Comments welcome.
I wish your mother could get the HIFU procedure.
HIFU is also recommended for Parkinson's and all kinds of tremors. Great Neuro is hard to find.
Please see my post today 3/23/25.
Please investigate HIGH INTENSITY FOCUSED ULTRASOUND (HIFU). No cutting no anesthesia no radiation.