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@projfan
I do have pain which may be attributable to MGUS but when one has coexisting conditions it's hard to tell. Diabetes, Celiac, age (let's not talk about that!) may also contribute. there seems to be some little they can do about peripheral neuropathy and the symptoms, it's frustrating.
Have you found any good treatment strategies?
Replies to "@projfan I do have pain which may be attributable to MGUS but when one has coexisting..."
There's an interesting article in the Feb/March AARP magazine about a patient in great pain who couldn't get a diagnosis for years and years. Finally she saw a plastic surgeon, Dr. Echo, at Houston Methodist Hospital who specializes in compressed peripheral nerves, also known as nerve entrapment. She had several surgeries, including sciatic nerve, and is out of her wheelchair, walking without crutches, pain-free. There aren't many of these surgeons in the US and people don't think of this as a cause (outside of carpal tunnel), just look within their own specialties. When the nerves are compressed blood flow is reduced, nerve fibers get damaged, and the result can be pain, weakness or paralysis. If you can find such a specialist, might be worth a try.
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In regard to treatments, I'm hoping I won't need an MGUS treatment strategy for a long time.
In regard to the PN, it stopped progressing when I cut all supplementary B6 out, so that was good. I explored a lot of stuff from the Mayo Clinic blog here, and what's been most helpful symptomatically have been toe socks combined with Vivo Barefoot shoes.