Anyone tried Kevzara for PMR?
I am 72 yo dx with PMR 1 1/2 years ago on Prednisone for treatment. It helped but threw me into diabetes! Since then wanted to get off Pred and went down 1mg per 2weeks. Finally off on March but symptoms so much worse. Tried 3 different prescription nsaids and not helping( but off diabetes meds!!) Anyone tried Kevzara? My family Doc told me to ask Rheumatologist about this med.
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8 Kevzara shots in and have been able to reduce Prednisone from 10mg, my previous floor, to 3mg so far. Hoping to get to completely off prednisone, and happy with results thus far. I have had some minor rashes after first few shots, but less now. I applied and Kevzara gave me a debit card w/ 15k to use for meds. My individual max out of pocket for my insurance in 8k, so am fortunate I’m not having to pay for the shots, for now. Unsure whether I will receive the same benefit and debit card after this year.
Did you apply from their website? I have an application from the Patient Assistance Program. It is not asking for financial information but does require information by my Dr. and pharmacist. Is this where you applied? I've been looking so long, for help with this drug. Thanks for your time!
https://www.kevzara.com/ra/resources/kevzaraconnect-copay-card
I was not asked to provide financial info.
THANK YOU!
Bummer, I'm on Medicare so I'm not eligible.
I'm on Medicare (traditional Medicare ) and am on Patient Assistance for Kevzara.
I had been on prednisone, I had issues with it in the past and then it stopped working for my PMR. I tapered off & have been on Kevzara since June, it’s definitely changed my life. I can function again. I’m only mildly tired after the injection, no other side effects. Absolutely worth trying.
It's my understanding the maximum out-of-pocket cost for prescription drugs under Medicare Part D is capped at $2,000 in 2025, meaning you won't pay any more for covered drugs once you reach that limit. I also believe Kevzara is now covered under Medicare (Tier 5) and on the formulary for PMR. Because the cap for 2025 was recently reduced to $2,000, that might be very helpful for many. This is just my loose understanding, so would need to confirmed with a Medicare consultant. Best of luck!
Unfortunately the $2000 cap is meaningless if no Medicare Part D plan in your area will cover Kevzara, which is what I faced for 2025. I was on patient assistance in 2024 but was cut off at the end of the year. It seems illegal to me to have a drug Medicare-approved for a disease and then to allow drug plans not to cover it. My drug plan did offer me a "deal": $16,000 a year as opposed to the original estimate of $33,000. I went off Kevzara and had a flare-up of PMR with some possible GCA symptoms. My rheumatologist has put in a prescription for an Actemra biosimilar infusion. We'll see what happens. In the meantime he raised my prednisone dose.
Thank you for educating me on this caveat. I’m sorry to learn about your negative experience. I hope you find the relief you deserve very soon.