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Fibromyalgia and radiation

Breast Cancer | Last Active: 9 hours ago | Replies (18)

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@ygregg

I had TNBC diagnosed in May 2024. I am 54 years old. I have undifferentiated connective tissue disease and fibromyalgia. I had 6 rounds of chemo (was unable to do the last 2 doses of Taxol due to nerve pain and passing out). I then had 12 of 20 doses of radiation. On the 12th dose of radiation I experienced severe fatigue and burning under my left arm and behind my left lung. The radiology oncology PA advised me to go to the ER in case I had a pulmonary embolism. So I did. There was nothing wrong internally. My husband said I looked grey and very sick. I was in bed for 2 weeks after this with pain behind my lung that comes and goes, 1 month from treatment and I'm still fatigued. There was no compassion or offer of medication for pain aside from 4% lidocaine. I don't feel there is enough understanding from radiology how their treatments affect people with autoimmune diseases and fibromyalgia. Needless to say, I chose to stop treatment and they wanted me to do at least 3 more when I couldn't even make it to their office. I was shocked, confused, and disappointed.

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Replies to "I had TNBC diagnosed in May 2024. I am 54 years old. I have undifferentiated connective..."

Hi
I am very sorry that you had this kind of experience. It's like they overkill everything. I don't know what
TNBC is. I hope that if possible you would find a different DR. The lack of care you had is very disappointing 😞.