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MGUS and pain

Blood Cancers & Disorders | Last Active: Mar 20 11:12am | Replies (18)

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@projfan

Just recently diagnosed with MGUS. Since research is my favorite thing, dug into it. And although MGUS is often asymptomatic, it is not always: bone pain seems to be mentioned as a symptom on a variety of authoritative websites -- in fact, sounds a lot like what you are talking about. So yeah -- keep pushing.

In my case, the MGUS diagnosis emerged from a last-ditch set of tests to diagnose my peripheral neuropathy, "last ditch" meaning that if I hadn't pressed hard on avoiding "idiopathic", they would not have done this particular set of tests. So apparently my neurologist who specializes in PN normally doesn't go there, but didn't find it a totally unreasonable thing to check out. And again, you'll find studies demonstrating a high level of correlation, whether or not it's definitely causative.

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Thank you, Projfan, for the validation that my leg pain may be related. It started a year ago and my labs were abnormal six months ago (altho I hadn’t had labs done for a year prior but they were all normal then-meaning the usual cbc, cmp, etc, not the specific ones that gave me my diagnosis last week). It got really bad for awhile so I stopped stains thinking it was a side effect. No change, not the statins (I tried a couple). The combo, of pain, abnormal labs, diagnosis are too close together to dismiss as not connected. Then there’s the critical need to guard my energy expenditure…
Please keep us informed of your future investigations.