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Camzyos side effect of itchiness?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 26 8:27pm | Replies (17)

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@susanml

I haven’t discussed the itching with my doctor. Just want to deal with it myself. I take an over the counter antihistamine when it’s so bad that I can’t sleep. Works great because I fall asleep and am impervious to the itch.
I too don’t want to stop the Camzyos to see whether it’s the culprit. The delivery to me is monthly and no one ever asks me how many tablets I have left.
Best not to stop it without the cardiologist’s permission. Please let us know what the allergist says. All the best.

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Replies to "I haven’t discussed the itching with my doctor. Just want to deal with it myself. I..."

Your doctor and pharmacist definitely need to know.
Because the medicine is so new they need to know side effects so they can start listing them on the warning package. The other thing they need to know is what medicines or supplements your taking because they can cause side effects with camzyos.
Hope the itch gets better mine finally subsided after the first two months
I was taking turmeric and green lipped muscle to help with joint pain and arthritis
When i told the pharmacist they said turmeric has interactions with camzyos
So i wait taking all supplements and my itching went away
Even my cardiologist did not know of interaction with turmeric
So please talk to both pharmacist and doctor about all supplements and medicines:)
Best of luck

Allergist said she didn't think it was the Camzyos but that it might be--she said there's too little data. Cardiologist said it's unlikely the Camzyos. But it definitely is. Maybe it's interacting with other medications I take that together cause itching, maybe it just causes itching in many of us--that's what I've seen on this and other bulletin boards. But there's no question about the source of the itching: Camzyos. I reported it to the "Nurse Navigator" at MyCamzyos and to the Bristol Myers Squibb people and they acted like they had never heard of this being a side effect. I also take Allegra antihistamine daily now for the itching. We have to play the cards we are dealt. No one is promised tomorrow. Just doing my best.