Is there any hope is SI joint pain will improve?

Posted by audrey5449 @audrey5449, Dec 3, 2023

I am despondent that the SI joint pain is not going to improve. I have been doing physical therapy and had shots last week. My pain is still severe. Is there options other than shots that will help with the pain? I have not been able to lie in a bed for over two years because to stretch out on my back makes the pain unbearable. Not allowed inside because of kidney disease. I'm not sure if I should limit my activities or if I should push through the pain. Can someone please tell me what to expect and/or what I need to do to help myself.

Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.

Profile picture for didamco @didamco

thank you for your comprehensive reply - very informative.
I am in Sydney Australia where this type of treatment is done by qualified physiotherapists.
I am going to enquire to see what is involved here.
Thanks again and take care

Jump to this post

I'm glad that what I posted is helpful. That you have physiotherapists in Australia specifically trained in the use of MFR is amazingly good! I have found that whenever I've needed/wanted specific skills/knowledge in a medical professional, it consumes time, energy, and determination to not give up. It can be daunting and even discouraging, but pays off. I've learned how to navigate the system, and have no problem with dropping a doctor, etc., if he/she is not engaged in really listening and focused on what I need in order to obtain a better quality of life. I live with chronic pain, have done so for longer than anyone would believe.
My lower back pain is actually almost non-existent this morning! Didn't have to sit on the sofa with the heating pad upon awakening. I've learned to listen to and respect what my body is telling me and not push myself when in a state of unwellness. Today is a 😊 smiley face day for me! Feels so good not to have my back/hips/spine/arms firing with nerve pain. And I can walk today with less stiffens and a lesser feeling of what I call "cement legs/noodle thighs". The CRPS in the left leg is never gone, but I'm in a "good place" today. I am not going to overdo: the house needs vacuuming and dusting (I can write messages in places!) and there are two loads of laundry, but I am NOT going to tackle it all today. PACING myself is essential to not succumbing to a fatigued, painful state. And I've learned to NOT bend over to do certain tasks. Unfortunately, the vacuuming falls on me b/c my husband suffers terribly with both rheumatoid AND osteoarthritis in both hands. He used to do that task, and did an excellent deep vacuuming that made the carpeting and area rugs look like new. But he helps with folding the laundry (does a great job!) and getting it all upstairs, and helps quite a bit around the house for which I am grateful. Going to bake him a batch of double chocolate gluten free brownies today as a "just because" gift.
Hope you can enjoy a great weekend. 🌺. And best of luck in locating a physiotherapist that can help you.

REPLY

I have had an SI rhizotmy. It last for about two years. I have problems with mt si joint since I fractured my actebulum and had an ORIF put in.

REPLY

MFR therapy will help you, I’m sure of it! There is a section on this site or Google it. It’s amazing for that. It might take a few sessions but it’s amazing!

REPLY

Try the pain rehab clinic at Mayo. It does help if you apply it. I graduated from the program almost a full year ago. Since my issues have no cure and the injections in the SI joints as well as throughout my spine didn't really work and give lasting relief I don't even go to pain management doctor anymore. If I have issues that my normal doctors can't help, I always contact the doctor at the Mayo Pain Rehabilitation clinic, Dr Sletten.

REPLY
Profile picture for Christine @thisoldewe

Has anyone tried the 'sacroloc' belt to support the pelvis and S.I. joints?

Jump to this post

Yes it helps with sacrolitis but not si joint dysfunction........
Hello I am Ashley 35 yrs old is good old Hott as can be Fl and I jus wanted to help if I could by lending a little about my SI Joint Story.................................... the sacroloc belt doesnt work on SI Joint Dysfunction bc the weight you put your SI Joint under by placing your weight down on which ever foot is the side causes the SI Joint to move/grind/lock up out of place ause more sever pain in my opinion with the belt on I've tried it all belts, joint inections, gabapentin(which does nothing for the griding pain followed by feeling locked up/stuck out of its original placement), Ive done stretches multiple times a day, Limited excersises that are not forceful-weight on the hip an or legs an back, All truly that I could find or that people could recommend except the 2 -plate sets an screws to keep it in place permanently an im about ready to say F*-It! DO IT-THE PAIN IS JUS TO MUCH! being miserably uncomfortable an in pain day in an day out with no position to ease the discomfort/pain or the constant tooth ache in my ass cheek (excuse my french) but I jus cant take it any more I had a herniated disc: Lamectomy/Disectomy an they thought that was what was causing it everything that was ailing me including the drop foot I ended up with, After I fell down 6 Wooden stairs to the hard ass concrete an low an behold after the surgery all hospital drs accused me of lying, being a medicine seeker, good ol' ADVENTHEALTH Hospital(Zephyrhills)
They Are shit but thankfully God Blessed me with a very trained, very smart, very caring, very skilled at being a Spinal Surgeon an an even more kind respectful down to earth by he said no your not crazy its sacrolitis or si joint dysfunction guaranteed an recommended the si joint injection which i got an I had alot less pain after about 6 hrs in most of the area but not all an putting full weight on my right food/side causes it to get pretty rough feeling so I am now after all that ready to jus have the minimal invasive surgery an duct tape it super glue it idc jus fix it please o best part is I have no INSURANCE so I am gonna have to figure out how to even make surgery possible I also get swelling from in my legs both all way from top of thigh to bottom of foot dk what that means either but I will keep you all in my prayers an I hope you find your fixes to your SI BS also an soon godbless each an everyone of you

REPLY
Profile picture for windyshores @windyshores

My daughter id PT for 10 years of misery with SI joint pain. She finally had PRP- platelet rich plasma- treatment and was literally better in 24 hours. She is going back for another after 7 years.

Jump to this post

Amazing. What office did she do the PRP?

REPLY
Profile picture for marye2 @marye2

I got a spring bed with a 3", 3lb density topper. I lie with a pillow between my knees if I am on my side or under my knees if on my back. Cold pack or microwaveable warm pack help; KT tape (see demo on you tube), lidocaine patches offer brief relief. I do sleep yoga moves before heading to bed.

Jump to this post

I have heard that yoga is the very worst thing you can do for SIJ dysfunction because the stretches pull on the joint

REPLY
Profile picture for debber67 @debber67

I have heard that yoga is the very worst thing you can do for SIJ dysfunction because the stretches pull on the joint

Jump to this post

@debber67
I believe it's only certain types of poses not yoga in general.
Jake

REPLY
Please sign in or register to post a reply.