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Diagnosing small bowel NETs with carcinoid syndrome
Neuroendocrine Tumors (NETs) | Last Active: 7 hours ago | Replies (16)Comment receiving replies
I have a carcinoid tumor in the Centrist part of my body and it is inoperable by my surgeon.
If you have such a tumor please tell me what you are doing.
Mine is growing real slow and I have not done anything will check in June of this year to see if it is still growing slowly. Do not know if left alone will it masstify.
People are commenting but are talking about treating other than carcinoid tumors.
If you suggest certain treatments and throw out the treatment, define what the medicine is going to do. They have suggested a shot once a month and I see people getting a shot once a month with different medications.
I need clarification and I am confused with people talking about their cancer. Thanks
GOD bless
Replies to "I have a carcinoid tumor in the Centrist part of my body and it is inoperable..."
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@panorman3 , I, too, have an inoperable tumor. It’s in my stomach and was found 7 years ago when I had a blockage in my small intestine - and I lost 10” of that intestine.
I immediately went on Octreotide injections monthly.
Then in 2020 a PET/CT revealed that some of the tumors scattered throughout my body were becoming more active and starting to grow a bit. But due to the pandemic I had to wait a year to go to Mayo for Lutathera treatment. From 2021 on, I’ve continued the monthly injections. But last year I started getting sicker and we found through a scan that they were growing. So last week I started another round of Lutathera treatments.
Bottom line - do your research, find an oncologist that works with Neuroendocrine/carcinoid tumors, and yes, get treatment as yes, the tumor (s) will progress and possible metastasize to other areas of your body.