I finally have been able to get my scalp un-twisted. Which I found was the cause of my hair twisting. I'm assuming that the reason it felt like it was "under " my skin was because my skin seemed to wrap itself around the long twists of hair. Since they were being pulled so tight from one side of my head which started pulling the other side of my head. This going to sound weird but I started peeling my scalp and skin on my body,apart to find the hair was in not under it. And yes, at times it would hurt. But as long as I went slow and was very careful not to tear at the skin, then it left no marks and I was able to get the long twists of hair out. At times I really thought I was losing my mind. And that I was just Imagining these things. Talk about patience! Depression would try and take over. But then, I'd have another break through. It's taken me over a year, working on my scalp and skin every single day. Sometimes for hours not realizing how many. Wanting to just give up and believe I'm just going to have to live the rest of my life this way. Nope, all that time experimenting, having patience and constantly telling myself this is real and we're going to fix it, no matter how long it takes, is paying off. I've been able to find so many of the twists. Some were easy, not so deep. Some felt like I was pulling a peice of my insides out. I still have a few to get but now I know I can take my time and I've gotten the hang of it. I feel so much better!! Because I feel better about the way I look and feel, my whole attitude on life has changed drastically for the good.

You are obviously NOT delusional @frustratedinflorida….as you can tell by the responses voiced here. It just that some doctors cannot admit that they don’t know the answers to all of our questions - or admit y that they don’t have the time to research those questions……