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Older than most in the MM group. 79 yrs and recently diagnosed.

Blood Cancers & Disorders | Last Active: Mar 20 5:34pm | Replies (18)
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@dancouclanel4

I'm 80 but with MDA/AML. Quite the journey. Never heard of your disease but will tell you it is a life changing ordeal. Research the culprit and MD Anderson is the North star. Relocating is questionable depending on where you live. Houston is a mad house...it never sleeps.
U might not need to relocate is my thought. Make a couple of meetings to see where this thing is going. Hang in there.

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Replies to "I'm 80 but with MDA/AML. Quite the journey. Never heard of your disease but will tell..."
dancouclanel4 | @dancouclanel4 | Mar 13 8:52am

That was MDS/AML.

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palepa | @palepa | Mar 14 11:53am

My husband will be 90 next month. He was diagnosed with MM 1 1/2 yrs ago and started treatment June 2024. He was taking Levidimide and dextamethadose (sp?) and took it for 6 mos. He had no pain even though MRI shows his back & ribs have compressed fractures. After a mild case of Covid in 2022 he ended up 2x in the ER W/i a 3 month period of time for transfusions which started the testing on why ge was anemic. His main complaints have been brain fog, fatigue and is breathlessness. Oncologist took him off chemo drugs as his blood work is stable and improved. He is also now on oxygen as needed. His age was a factor in his treatment. His oncologist told him upfront that he cannot cure the MM all he can do is try to help my husband gave a better quality of life. We live in Honolulu and Queens Hospital is affiliated with MD Anderson. His next testing will be for 4/7/25 to see if the MM is still stable and whether he needs to go back on meds. I hope this has been somewhat helpful

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slembo1 | @slembo1 | Mar 20 2:45pm

Thank for your support!

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