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Radiation destroyed my bladder.

Prostate Cancer | Last Active: 3 hours ago | Replies (15)

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@sansman

I too had radiation get into my bladder. It took about 18 months for the problems to start. Blood in the urine, then started passing “chunks” of bladder. Doc then did my first cystoscopy, many since. I was having to self-cath 8-10 times a day for about 18 months before getting my Supra Pubic Catheter, this allowed my urethra to heal somewhat, only having to cath 2 or 3 times a month but that only lasts 3 to 4 months and gradually the self cathing increases til it’s time for another cystoscopy and it all begins again.
I also went through 4 urologist in two
states looking for answers that made sense to me.
I was forced to retire early because of all this and I have been through a hell of a lot pain and discomfort but I am alive.
I still get up 7 or 8 times a night to pee, I still where 4 or 5 depends a day, but I am alive. My journey has a few more peaks and valleys, but I’m alive. H
You got dealt a lousy hand in this life, as have most of us on this site, this is a place where you get answers to your questions and support for your journey.
I could not have made it this far without my support group, and my wife has been a godsend throughout all this, I would probably not have tried to get through all this without her.
God luck and God bless,
Randy

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Replies to "I too had radiation get into my bladder. It took about 18 months for the problems..."

My husband has an open and close valve on his supra pubic. It doesn't sound like you have one. Maybe check into that to stop leakage. Then you can open it and pee. Best of luck!!