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DiscussionI have Interstitial lung disease. Coughing and S.O.B upon exertion.
Lung Health | Last Active: Jul 9 7:00pm | Replies (26)Comment receiving replies
Replies to "I have been truly blessed during this entire journey. I did some pre-prep so that when..."
Thanks. Yes this info is helpful. I had read horror stories about lung transplants requiring weeks in a medically-induced coma followed by months of very light strength building.
I am recently getting over 55 days in hospital, followed by 24 days in physical rehab after a severe flare of my ILD.
I am now in a pulmonary rehab program which I feel is helping me a lot. Besides muscle strength building I am now able to walk a mile or close to it each day. That's not without breaks. I do have to stop for rests, but still, I am happy with my progress so far.
When I see the respirologist in a couple of weeks we will discuss my having a transplant. I am more in favor of it now, knowing that the procedure and the recovery process is not as long as I had feared.
I was in good health before the ILD flare and apart from my lungs I think I am in not bad health now so the recovery that you have described doesn't scare me off.
Thanks again.