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Tymlos for two years and then Prolia - what are your experiences?

Osteoporosis & Bone Health | Last Active: Mar 15 6:57am | Replies (107)
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@pmd25

I was just diagnosed with Osteoporosis in my spine... T score -2.5 and I am terrified. My PCP want me to start Prolia. I have done a bit of research, and the side effects sound terrible!
I have been reading about prunes!
"Prunes have been shown to increase the markers of bone formation. They also appear to down regulate the inflammatory bone breakdown factor known as RANKL. Inhibiting RANKL or its receptor, RANK, reduces bone resorption. This is the same mechanism of action of the popular osteoporosis drug Prolia d e n o s u m a b."

Please tell me why others here are against this drug? I NEED MORE INFO!! BTW, I am 70. Thank you!

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Replies to "I was just diagnosed with Osteoporosis in my spine... T score -2.5 and I am terrified...."
sonodeka | @sonodeka | Mar 13 11:58am

Hello @pmd25. I too was terrified when I was diagnosed with -2.6. The first drug offered to me was also Prolia, which when I began researching led me to Mayo Connect. I declined the drug, (and was declined by my insurance anyway), and so began my deep dive into OP...
There is a lot to learn here, and you have time and options; no need to jump at the first drug, or any drug necessarily, with your low numbers. There is a vast amount of information here to help you. You can search by topic and will find info about drugs, root causes, testing, exercise, nutrition and yes prunes.
Many of us are trying to maintain our bone with HRT. Lots about that here as well.
Take your time and get informed. The worry will dissipate, things will feel less scary! Wishing you all the best!!

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kristie2 | @kristie2 | Mar 14 9:29pm

So after 1 year of Evenity my endocrinologist decided based on new studies that she wanted me to take Prolia for 3 injections to build more bone density. My DEXA showed that my spine in now -3.3 from -4.6. I have had 2 doses so far and no side effects. I will then take reclast to lock my gains in. I have another DEXA in August.
When my T score in my spine was lower -2.5 in my 60’s I thought it could be managed by exercising, and supplementing. Unfortunately that did not turn out for me. There are some people whom it has worked for.
Read Great Bones by Keith McCormick and I also like Doug Lucas MD who is on YouTube.

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