@beccamarieg, I hope you’ve found an autonomic specialist by now, but in case you haven’t, I wanted to suggest trying your local Dysautonomia International support group on Facebook.

If you don’t use Facebook, you can email the group moderator and ask for recommendations.

Unfortunately I can’t post a link to the page because I’m a new member. Please go to the Dysautonomia International website, choose “Connect” from the options across the top of the page, then “Find a support group”.

You could also try Googling “autonomic laboratory” or “autonomic nerologist” plus the name of nearby large cities.

@beccamarieg my husband suffered with dysautonomia which started with a severe UTI three years ago. It was recognized by his cardiologist and care team, but each medication they tried had no lasting effect. He had it until he passed away (Prostate cancer), with no relief. Unfortunately, it made his final years very difficult for us both.