PMR to RA?

Posted by cgm @cgm, Sep 24, 2024

Has anyone converted from PMR to RA?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@jlo2252

@dadcue ,@cgm
You know already that we are in that same boat, unfortunately.
I was diagnosed with reactive arthritis in my early twenties. Like you I was treated with a fast taper of prednisone. They also had me on Indocin and aspirin, cause in those days they did not have the biologics and medications they have now. I also had lots of physical therapy because I was a young mom and they were afraid my joints would stiffen up. I was lucky and all my joint issues cleared up and I was finally able to return to work a year later. And then I went into remission for 20 years! I also have osteoarthritis in my hands with a couple of nodes in my fingers.
PMR did not appear until I was 72( I just turned 75) and this is very different. I’m in my 2nd flare right now and my doctor wants me to take Actemra so hopefully I can get off the prednisone. I’m on 7.5 mg currently.

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Can I ask you how long you were on prednisone for your PMR? I was recently diagnosed with PMR and they stored at me at a very low dose of prednisone being 4 mg. It has worked for me and relieved my pain almost instantly. I went to my rheumatologist last week after being on 4 mg for three months and I asked if I could have it lowered and they lowered it to 2 mg. So far so good, I don’t feel any pain with the 2 mg but it’s only been three days since they lowered it. I was just wondering how long before your PMR went into remission? Like I said, I’ve only been on prednisone for three months, but I think that I had PMR for at least 3 to 4 months before I start the prednisone. Could it be that my PMR is already going into it remission in less than a year? I haven’t seen any one talk about their PMR going into remission that fast.

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@mimi1204

Can I ask you how long you were on prednisone for your PMR? I was recently diagnosed with PMR and they stored at me at a very low dose of prednisone being 4 mg. It has worked for me and relieved my pain almost instantly. I went to my rheumatologist last week after being on 4 mg for three months and I asked if I could have it lowered and they lowered it to 2 mg. So far so good, I don’t feel any pain with the 2 mg but it’s only been three days since they lowered it. I was just wondering how long before your PMR went into remission? Like I said, I’ve only been on prednisone for three months, but I think that I had PMR for at least 3 to 4 months before I start the prednisone. Could it be that my PMR is already going into it remission in less than a year? I haven’t seen any one talk about their PMR going into remission that fast.

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Hello! I was on prednisone for several years. I was weaned off for about the last 6-9 months but am having an exacerbation. Ugh. Am actually scheduling a Mayo Clinic apt.

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@cgm

Hello! I was on prednisone for several years. I was weaned off for about the last 6-9 months but am having an exacerbation. Ugh. Am actually scheduling a Mayo Clinic apt.

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Oh I’m sorry to hear that.
What dose prednisone did you start on and for how long?
This is all new to me. My inflammation came down immediately on the 4 mg, I’m wondering if that’s rare and if I actually have PMR. Everything I read says that people start on such a high dose. I guess I’m lucky that I was controlled at such a low dose. I hate the fact of being on this medication, but I don’t like the symptoms when I’m not on it. Thank you for your time.
I hope you find some good results when you go to the clinic

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@johnbishop

My PMR is in remission but I've always worried a little about RA since I do have degenerative arthritis and carpal tunnel in my hands. As a teenager I remember my mother struggling with RA which seemed to bother her hands the worse. I have often thought she might have had PMR that wasn't diagnosed prior to her RA. I thought you might want to scan through the other discussions and comments by members who have commented about PMR and RA. Here's a list of the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=PMR%20+RA

I did find an article on your question.
"FAQ's - Can PR turn into RA? - There is no current evidence that PR can turn into RA. The conditions have different underlying mechanisms."
-- Polymyalgia rheumatica vs. rheumatoid arthritis: https://www.medicalnewstoday.com/articles/polymyalgia-rheumatica-vs-rheumatoid-arthritis

You mentioned earlier that you are not taking anything for pain but were thinking about trying LDN. Do you mind sharing how long ago you were diagnosed with PMR?

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Johnbishop
I was just wondering if you could tell me how long it took for your PMR to go into remission? I’m three months in and I feel like I have a mild case because I started it on a very low dose of prednisone being 4 mg and my pain and stiffness completely went away the next day after starting The medication. I don’t want to rush it, but I also don’t want
to be on prednisone for an extended period of time.
I was told that it could take up to two years, but I feel like mine is such a mild case that maybe it won’t take that long. So I was just wondering how long it took for yours to go into remission and how you did with the tapering down of your prednisone

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@mimi1204

Johnbishop
I was just wondering if you could tell me how long it took for your PMR to go into remission? I’m three months in and I feel like I have a mild case because I started it on a very low dose of prednisone being 4 mg and my pain and stiffness completely went away the next day after starting The medication. I don’t want to rush it, but I also don’t want
to be on prednisone for an extended period of time.
I was told that it could take up to two years, but I feel like mine is such a mild case that maybe it won’t take that long. So I was just wondering how long it took for yours to go into remission and how you did with the tapering down of your prednisone

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@mimi1204, The first time my PMR was diagnosed I was started on 20 mg prednisone which provided relief from the pain within an hour or so of my morning dose. It took me 3 and half years to taper off of prednisone with the last six months going back and forth between 1 mg and 1/2 mg (split 1 mg tablets) until I was finally able to stop taking prednisone and only had an acceptable amount of morning pain/discomfort (less than 2 on my personal scale of 0 to 10) which went away after being up and moving around for a bit.

I stayed in remission for about six years and then the PMR came back and again I was started on 20 mg prednisone. This time I had a better handle on managing symptoms, eating healthier with less inflammatory foods and sugar. I was able to taper off of prednisone in about 1 and a half years. So far my PMR has been in remission and it's been almost 7 years.

You might find the following discussion helpful for tips/suggestions from other members on managing the symptoms:
-- PMR Dosages and Managing Symptoms:
https://connect.mayoclinic.org/discussion/pmr-dosages/

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