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Newly diagnosed with MGUS and so anxious

Blood Cancers & Disorders | Last Active: Mar 13 5:27pm | Replies (23)

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@emmiet

@scared58 I read through this thread and wanted to offer my support, too. As a trained researcher, I usually dig up as much information as possible. But my DLBCL/Marginal Zone diagnosis presented me with an overwhelming situation where I couldn't do that. I found several trusted resources. I learned enough to get me through the beginning stages and dove deeper as time passed. Mayo and the Leukemia and Lymphoma Society (LLS) were my primary go-to organizations. LLS is an excellent resource that provides info and has an 800 number to speak with a trained oncology social worker 9 am to 9 pm EST Monday to Friday. Even though I see an excellent oncology counselor that my medical center provides, LLS's services helped when I had moments where I needed precise information or resources (including grants) or an extra ear to listen outside of my counseling appointments. I also can't speak highly enough of regular appointments with an oncology counselor if your medical center offers that service. Every bit helps.☺

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