ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

@patsy2222 the member you had wished to connect with is no longer receiving email notifications so I want to bring in a few other members who may be able to share some of their experiences to aid you @rt061069 @sawah3 and @jenniferhunter.

Can you share your feelings on pain medication for reference with other members who may join the conversation?

My name is William and my wife suffers from chronic abdominal pain. We have been to ER’s like crazy and when I say a lot I mean easily 300-400 times in the last 4 years. Doctors do nothing run the usual tests and discharge her all while she continues to suffer from pain in the stomach coming from the right upper quadrant. Thru my own research I believe she has A.C.N.E.S What hospital or doctor do you have to go to where they can investigate her abdominal wall and give her this diagnosis. CT scans, MRI’s Ultrasounds, Endoscopies all come up negative. She has nausea and vomiting with this sometimes as well. Any help would be appreciated. We live in the Northern California area

How can I contact the Dr. that performed the surgery? I, too have gone through every strategy mentioned here. Not a single Dr. has had ever heard of AWP or ACNES. A Mayo Dr. named Seth Sweetser wrote a research paper on AWP caused by ACNES. In it he states that if trigger point injections do not adequately reduce the pain level surgery is the best option.

I finally found a doctor in Canada by searching up authors of research papers in ACNES lol.

After a fall bladder removal, I went on a two year journey jumping around from various medical specialties to try and figure out where my pain was coming from. So many ER visits!! I finally found a general surgeon in a neighbouring community who diagnosed me with ACNES. Then I had to find someone to treat. I was able to get nerve blocks done in my own city, acupuncture, various pain killers etc. They have done all the scans and tried all the “things”. The only thing left was a surgical option with neurectomy. In my desperation I have read my fair share of research and found the name of a doctor who is performing the surgery on me in two weeks (Calgary, AB, Canada). I’m beyond thrilled and finally have hope again.

You do not need a 10 pt questionnaire!!! What you need is to perform the carnett test on yourself or with Dr who is knowledgeable about ACNES then get trigger point injections in that area to see if there is temporary relief.
It's all on youtube i.e., carnett test, abdominal cutaneous nerve entrapment.

Dr Thomas Gillespie - St Joseph's Medical Center Phoenix, AZ. He performed Robotic Laparoscopic surgery for ACNES on me 9/2/21 cutting the T8, T9 and T10 nerves on right side below rib cage. After 9 months of unbearable pain I left the hospital PAIN FREE - cured and now it's just a distant bad memory. Dr Gillespie is an amazing surgeon and does take new patients.

After a fall bladder removal, I went on a two year journey jumping around from various medical specialties to try and figure out where my pain was coming from. So many ER visits!! I finally found a general surgeon in a neighbouring community who diagnosed me with ACNES. Then I had to find someone to treat. I was able to get nerve blocks done in my own city, acupuncture, various pain killers etc. They have done all the scans and tried all the “things”. The only thing left was a surgical option with neurectomy. In my desperation I have read my fair share of research and found the name of a doctor who is performing the surgery on me in two weeks (Calgary, AB, Canada). I’m beyond thrilled and finally have hope again.

hi naadia, I thought I had ACNES until I was examined by a neurosurgeon who rulled out ACNES arguing that the spots on my stomach where I feel burning sensation, tintling and needle prickles do not match with ACNES. He told me I have poly-neuropathy.