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Living with Neuroendocrine NETS, any advice?

Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (111)
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@laree

@tomrennie
Thank you for getting back. I wish you all the best! Sounds like things are going well! You mentioned that you did experience side effects? Did you get used to Captem at aome point? That is great that you didn't need any other therapies, but Captem. Awesome story! Thanks again.

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Replies to "@tomrennie Thank you for getting back. I wish you all the best! Sounds like things are..."
laree | @laree | Mar 12 1:57am

*some

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Turkey | @tomrennie | Mar 14 12:31pm

I was really sick when I first started Captem. I experienced side effects of nausea, vomiting... you will be given something for the nausea and vomiting to take before taking the Temozolomide, overall body aches and pains, mouth sores, neuropathy, and fatigue. I didn't get everything all of the time, but I did experience most of them eventually. My body has adapted much better over time. I no longer take support meds like gabapentin for nerve pain or motion sickness patches for nausea. It does take some getting used to but I am alive. I shouldn't be. If you have any other questions, just let me know.

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