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Septal Myectomy Consideration

Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 12 7:42am | Replies (39)
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@mmicahk

This is incredibly helpful, because that is exactly the airport I'd be flying from/to. I'm about a 30 minute drive from SMF.

Woah, the pro-tip is amazing about the angiogram. I figured about all the pre-op labs/scans/etc needing to be redone. I am still unclear how I get a referral but I'm guessing after approval from Kaiser I'd be figuring that out or they would be organizing for me.

Wow that is amazing that Mayo was able to get Kaiser to transfer and approve for your friend. I feel like there's hope now. Much luck to your friends during the procedure in April. I'm sure he's in great hands at UCSF.

I know I've said it a number of times, but I'm really thankful to know ahead. Only a year ago I learned I had a murmur, then last April got my diagnosis and at that time I was told surgery likely wasn't going to be needed in the future for my case. Fast forward a year and that picture changed--I didn't think it was something I'd even have to be talking about, but here we are.

I'm glad this group exists and there is so much to learn from everyone here. I feel I'm impatiently waiting at this point but I have to remind myself I just learned about needing surgery 2 weeks ago and there is a journey ahead leading up to getting the procedure.

Thanks all!

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Replies to "This is incredibly helpful, because that is exactly the airport I'd be flying from/to. I'm about..."
milkmaid | @milkmaid | Mar 14 11:46pm

I had my MVR replacement almost 35 years ago. I was a RN, so that was helpful. I learned what I called the A-B-C-D method. A- preparing all the things before your surgery.
B. Having the surgery
C. Recovery from surgery
D. What to do with rest of your life or" the new normal".
This is important because its like our body, mind will and emotions know we can really only deal with each step, as we go through it 1 at a time. Not saying preparation can' t take place but just be aware and don't be to hard on yourself. I highly recommend Cardiac rehab! I went through it and helped others through it professionally over the years.
I never went to work i always felt i was going to play, such a joy in my life. Be blessed and do well, one step at a time

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