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Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (14)
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Replies to "Hi @mmicahk, You're doing a terrific job of educating yourself! Way to go! We flew out..."
This is incredibly helpful, because that is exactly the airport I'd be flying from/to. I'm about a 30 minute drive from SMF.
Woah, the pro-tip is amazing about the angiogram. I figured about all the pre-op labs/scans/etc needing to be redone. I am still unclear how I get a referral but I'm guessing after approval from Kaiser I'd be figuring that out or they would be organizing for me.
Wow that is amazing that Mayo was able to get Kaiser to transfer and approve for your friend. I feel like there's hope now. Much luck to your friends during the procedure in April. I'm sure he's in great hands at UCSF.
I know I've said it a number of times, but I'm really thankful to know ahead. Only a year ago I learned I had a murmur, then last April got my diagnosis and at that time I was told surgery likely wasn't going to be needed in the future for my case. Fast forward a year and that picture changed--I didn't think it was something I'd even have to be talking about, but here we are.
I'm glad this group exists and there is so much to learn from everyone here. I feel I'm impatiently waiting at this point but I have to remind myself I just learned about needing surgery 2 weeks ago and there is a journey ahead leading up to getting the procedure.
Thanks all!