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MDS (myelodysplastic syndrome): When to start treatment?
Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (40)Comment receiving replies
Sherri,
We are never alone on this journey, thanks to all on this site who are going through similar situations. That's helped us, especially me. I'm the caregiver to him and my elderly mom, so some days are harder than others. It's been nice though, as we are here to listen, share stories and support one another.
Dave is getting a shot of Arenesp, every three weeks. Other than he says it stings when they give it, he's had no symptoms, or adverse effects. His hgb has come up some. Staying around 10 for two-three months. His hematologist was okay with that, since bwe're only shooting for 11. Any higher than that, there can cause a stroke, or heart attack. We're gonna keep trying this route. He also told him to take an iron tablet every day, to see if this helps. He didn't think it will, but said it could, so it was worth a try.
We will see him again in 6 weeks to talk. There are other meds out there but insurance can deny until certain markers are met.
He doesn't have the energy and stamina he used to. He tires easily but doesn't feel sick, so we take that as a win for now.
We'll definitely keep in contact. Always good to have prayers shared between our loved ones and our families.
God Bless!
Gail
Replies to "Sherri, We are never alone on this journey, thanks to all on this site who are..."
Hi Gail,
Even though I do not know you personally, I want you to know that I am always thinking of you.
I am very weepy today and trying to pull myself together. I should be happy and am happy because today we are blessed with another good day. I guess I have been reading to many support group postings on Facebook. I just have to keep in mind one day at a time and be strong.
I was thinking of you earlier this morning and just wanted to let you know. I hope you and your are finding peace in your day. How has your husband been feeling and your mom?
My husband had a second BMB this past Monday and his blood Hemoglobin went from a 10.6 to 11.1. So, for that we celebrated. I know everyone's journey is different and I guess that is why I can't find the answer I am looking for regarding medication and when. To be honest we haven't even discussed medications, but I know it is heading in our direction.
Thank you for allowing me to unburden myself.
I am here if you ever need to do the same.
Much love and prayers sent your way.
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Dear Gail,
I am so happy you had a positive report. I know how wonderful it feels to leave the doctor's office with a wait see prognosis. I thank God every day for the gift of another healthy day together. This is a journey that I never thought I would be on, and I thank you so much for your support.
My prayers and thoughts are with you and your family.
Sincerely,
Sherri