scared58, I do not know about MGUS but I do know about being diagnosed with a rare blood cancer (PV). I did the same thing you speak of, researching on the internet. I believe the internet can be our friend or bad information overload. It is hard to tell which is which sometimes. It is very easy to go down the negative rabbit hole. I know, I did it myself. One comfort is to hear from other people with your condition. I do not know anyone with the same condition as I have. This internet newsboard, "Mayo Clinic" has been a great comfort for me to be able to connect with others just like me. I choose to stay active. I go to my gymnasium, and am active in several veterans groups. I have very few symptoms from my PV and refuse to be taken down by this mysterious genetic mutation I have. I suggest you do not withdraw like I did after my initial diagnose but continue to do everything you can. I wish you the best. From the home of the Kentucky Derby, Lousiville.