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MAC & Bronchiectasis | Last Active: Mar 13 3:12am | Replies (36)Comment receiving replies
Replies to "Hi Bayarea 58 I don't think I have seen you mention your having a MAC infection?..."
@blm1007blm1007 yes I have an MAI infection in addition to BE. Diagnosed at essentially same time. I have no history of lung issues so I suspect my BE was caused by the NTM. The only mucus I experience is largely after eating, I get the sensation that I have to clear my throat for the first 10-15 mts. I also mainly only cough while eating, and often feel like food/drink is going down wrong tube. I have had a workup for swallow dysfunction and gerd and nothing was found. I am headed back to speech therapy to see if there is anything they can do for me from a PT perspective despite the negative test results. Since being part of this group I can see that others struggle with that feeling of mucus in the throat but mine is limited almost entirely to eating/drinking, so not sure what to make of it. I would not have thought it related to my lungs, but given others experience, hard to say. I am of course worried about aspiration and NTM, as perhaps my eating/drinking issues are how I got infected in the first place, but I can’t seem to get either my ENT or GI doctors interested, but perhaps given my negative test results that is not unexpected. It’s frustrating for sure given the risk of NTM with aspiration.