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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 3 hours ago | Replies (951)

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@colleenyoung

Hi @chuckeg, I appreciate the details. So you've started treatment now. Was your first appointment last week the radiation simulation appointment? Have you started daily radiation now? How is it going?

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Replies to "Hi @chuckeg, I appreciate the details. So you've started treatment now. Was your first appointment last..."

Hi Colleen,

This is an update. Finished radiation 5 weeks ago. Unfortunately I acquired a blood infection shortly after. Spent a full week in the hospital identifying the infection (bacteria). Eventually getting a Picc line with 2 antibiotics. Got one clear/ clean blood test resulting in being released to home health care, antibiotics 24hours/day for a month. The urgency had 2 reasons, getting ready for a June 17 surgery and stopping this infection from spreading and getting worse. Weekly blood tests were taken at home with improvement showing in basic metabolic panels. Secondly, pain medications have been effective, enough to modify its use by taking Oxy (twice a day, 5 Mg.) and Tylenol (3000 mg) per 24 hours. I've had PT and OT during this time, to get me stronger prior to surgery. I hope to have more after surgery. My pain level in my left leg has also been reduced. The numbness has now spread to my left foot (from my hip). My left leg is restricting movement and balance. My PT has really helped. I have fallen 3 more times in the past 10 days, with a walker (for a total of 12 times since Jan.). Lucky that I have not hurt myself. I'm impatient with my movements (guy thing?). Anyway I'll keep my story on this blog going after surgery.