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Typical Carcinoid Tumor in Lungs

Neuroendocrine Tumors (NETs) | Last Active: Mar 11 11:59am | Replies (54)
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@jukebox42

But what does the octreotide do to you? From what I've found when web searching, it seems to exacerbate the symptoms of the typical lung NET. Mine is located in mid right lung; is operable if I want to take that chance of how I'll be with 2/3 of lung gone at age 83. I'm just trying to control my stress!!!

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Replies to "But what does the octreotide do to you? From what I've found when web searching, it..."
Zebra | @californiazebra | Mar 10 4:47pm

@jukebox42
Sorry you feel stressed. Is this a new diagnosis for you? I posted about octreotide side effects on this thread on 1/7/25 if you page back and read earlier responses. Octreotide took away most of my respiratory issues. It did give me side effects but I prefer those to respiratory issues. I’ve been taking octreotide injections for 4 years and won’t stop unless it stops working. Everyone reacts differently to meds. I tend to get more side effects than average on any med. Other people rarely experience side effects. When you read a list of side effects that is everything anyone reported and does not mean you will have every one of those. Typical lung NET is slow growing and octreotide slows it even more.

What symptoms do you have from your lung NET that are bothersome?

I don’t ever want part of my lung removed either so I understand your feelings about that.

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