Good to see you are reaching out...this is a frustrating disease. The old axiom of there are things you can control and those that you can't. Put both on separate sheets of paper and update when your emotions are aroused put those feelings down where applicable.
2nd opinion, diets helping platelets recovery, one on one mentor, research chromosome mutations, etc. Faith is a free drug for you....cash in on it. There should be a support group your doctor can recommend. Even your pastor. Don't do this on your own... if you are convinced that you are where you need to be in your doctor things outside your control are now providing you the best of the best....work on things you can control, your emotions...find a LLS mentor to lift your understanding as to what us going on with your body. Half the battle is mental.
Do this....create a excel sheet with column headings of....
Platelets; wbc; hgb; and anc....add ast for your liver. 5 columns.
Each lab put those # s on that sheet and follow your progress. I have one started on 12.5.2023...my platelets were 17, wbc was...get this... ".2"; hgb was low and anc was low supplemented by meds. To this day I have a record of all of these key indicators to Monday of last week. It is a story of my journey and what helped. My doctor likes my approach as I ask questions about treatment and recovery time. I played a role in it...I elected to give up some things to see where my body was between chemotherapy. We discovered lowering my vidaza to 100mg for 3 days not 7 or 5 that my bone marrow recovery was quicker and stronger. I have not had a transfusion since July 11, 2024....8 months ago. It has not been easy....I've walked in your shoes....be easy on yourself. And stay connected here. 🍻 👏