← Return to MDS (myelodysplastic syndrome): When to start treatment?

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@shemac711shemac711

Good afternoon,
I am recently new to this support group as of today. I happened to see your post which caught my attention as I was searching the intranet to learn the same information. My husband has been diagnosed with MDS lineage dysplasia.
My husband looks and feels fine, but his platelet and hemoglobin levels are continuing on the downward trend.
We are scheduled for another bone marrow biopsy so his doctor can get a better understanding on how his cancer is advancing. I know our next visit we will be discussing treatment
My husband and I are in the same position as you were in December. Thank God, at this point my husband is feeling great and you would never know anything is the matter.
I understand everyone's journey is different, but I was wondering if you could share yours with me.
I appreciate anything you can share.
Sincerely,
shermac711shemac711

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Replies to "Good afternoon, I am recently new to this support group as of today. I happened to..."

I started showing signs almost two years ago and was diagnosed over a year ago with MDS. My monthly bloodwork has been stable for the year. Therefore I am in the wait and see stage. I have fatigue but listen to my body and just live a slower way of life. The advice I was given was to quit worrying and enjoy life. Hard to do but it really has helped me cope with this disease. 74 and making the most of the situation.