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← Return to HCM-ers: Introduce yourself or just say hi
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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (941)Comment receiving replies
1birdhouse, I have unobstructive hypertrophic cardmyopathy and would like to discovery what other patients experience as far as symptoms angina etc. Have a good morning.
Replies to "1birdhouse, I have unobstructive hypertrophic cardmyopathy and would like to discovery what other patients experience as..."
@birdhouse, Welcome to Mayo Clinic Connect. You have discovered a great place to learn from others with your same diagnosis. Have you had a chance to read some of the stories here on Connect about others who share their struggles and symptoms?
What symptoms do you have with your HCM? How long did it take before you were diagnosed?
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Hi birdhouse,
I have non-obstructive HCM (I have Apical HCM). I was not diagnosed until I was 78. Had no symptoms except palpitations when diagnosed. About nine months later Atrial Fibrillation presented as persistent. My cardiologist and EP at Mayo both said it was there but never showed on holter monitor as AF does not start as persistent. This is the only problem I have had . It took six months of consist AF sometimes with as high as 175 before it was under control. Rate meds did not work, so am now on Dofetilide (Tikosyn) for rhythm control. Has worked except for some breakthrough episodes in the past nine months.