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Replies to "Like you, I was also diagnosed in 2024. My diagnosis, MF, was confirmed by a bone..."
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (143)
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Like you, I was also diagnosed in 2024. My diagnosis, MF, was confirmed by a bone marrow biopsy, pretty much the gold standard for this disease. From there I was referred to an MPN specialist. I would advise you seek out a specialist as our disease is rare and takes someone with advanced knowledge.
I am early in the disease and currently on daily baby aspirin with no significant symptoms.
Replies to "Like you, I was also diagnosed in 2024. My diagnosis, MF, was confirmed by a bone..."
Hi again ideachaser1,
If you do not mind sharing, what did your bone marrow biopsy specifically say about your diagnosis of MF?
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Hi ideachaser1,
Thank you for your reply. I would really like have a true myeloid proliferative neoplasms specialist, but I am locked into a Senior Advantage Plan until January 1, 2025, as I chose an Advantage Medicare Plan when I just turned 65 pretty recently. I do not feel my current O/H is a specialist in MPNs. Six days ago, she did just send me a memo that I could take baby aspirin after earlier sending me a memo not to take baby aspirin. I never took the Hydrea she prescribed for me on January 10, 2025 at my first visit with her. So I have been taking one baby aspirin daily for six days just fine and I still do not have any symptoms.
I am glad to hear you are doing well.