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Thank you so much for all of this information!
Both Tymolos and Forteo are out of reach for me Financially. Tymolos isn't covered at all by my insurance and the company's "patient aid" doesn't even come close to making enough of a dent in the price for me to buy it. They must have had a more robust offering when it first came out, because I heard about people getting it for free. That is no longer the case.
Forteo, while covered, would leave me owing 60% of the cost. They have no program to help with costs.
Evenity is covered because it is billed under the "out patient surgery" portion of my insurance, which, I apparently have very good coverage for, at least this year. Ditto for reclast. (Tymolos and Forteo are billed as high tier special prescription drugs. )
Evenity is SO NEW. I lost several years to a "new drug" that they didn't know all the side effects of when I was in my 20's and would like to not repeat that experience.
And so, here I sit. The only thing I know for sure is that I am hoping to get an REMS echo light scan in the coming months.
Good night!
Replies to "Thank you so much for all of this information! Both Tymolos and Forteo are out of..."
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@katgirl It is indeed a complex business, this world of osteoporosis treatment. That is if you plunge into trying to understand it and not just doing whatever any given doctor says to do.
I want to offer a slightly different perspective than yours that might be of some use. First I'm a person that chose Evenity despite the fact that it hasn't been available as long as Forteo or Tymlos.
My thinking went like this:
Evenity is a more powerful bone builder than Forteo or Tymlos. Way more.
Evenity does not have any more acute side effects than the other two.
I actually think it has less.
Evenity is once a month which I think is a great dosing regimen. It has a modest time period of impact but does not provide a constant irritation or likelihood of developing sensitivity to it like daily injections do. And it's not something that stays in your body for years like those Reclast shots.
I agree with your concerns about "new drugs". I think that is important.
In this case I decided the other factors outweighed that concern, for me that is.
Besides, Evenity is not as new as everyone seems to think. True it was made available in 2019 but the research goes back to around 2006. And the larger trials were completed years before the approval. The FRAME trial was published in 2016 and included 3321 patients on Evenity. The ARCH study with was published in 2017 and 2046 women took Evenity.
As you might have guessed from my views, I took Evenity, had great results in my spine and slight gains in my hips. I had no side effects worth mentioning and I intend to take it again to try to gain even more. Best of luck to you with your decisions.